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Theory  of Change


What is the impact that the organization is working for?

Every child in North Carolina who has a medically fragile condition — whatever their background or circumstances — will have the opportunity to live their best life possible, and will have access to the healthcare, education, and other supports needed to make this a reality.


What needs to be in place (conditions) for that impact to happen?

  • Public programs that support the healthcare and education of medically fragile children ensure the provision of quality, timely and affordable services that work in partnership with families. 
  • Policymakers understand the needs of medically fragile children and promote policies that ensure that children receive the healthcare, education and other supports they need. 
  • Healthcare providers and educators understand the complex needs of medically fragile children and have the capacity to provide services that meet their needs. 
  • Parents and families are able to partner with their children’s providers and fully understand the diagnosis/disease process in order to promote the best care for their children 
  • Parents and families understand the services and resources available to them and are able to access these easily. 
  • Parents and families are active in advocating for systems and policy change.

What kinds of strategies does AFMFKNC use to make those conditions happen?

Strategy 1:

Educate stakeholders, including parents/caregivers, providers, policymakers and the larger community about the needs of medically fragile children and the services and resources available to them.

Strategy 2:

Advocate at multiple levels – from policy advocacy to individual case advocacy – to ensure the healthcare, education, and other support needs of medically fragile children and their caregivers are met.

  1. Work with policy makers — DHHS officials, educators, legislators — to ensure public programs (CAP-C, Innovations Waiver, Special Education) are optimized to provide the best service to the most children possible


  2. Train parents and family members to advocate for their own children and to assist others
    a. Answer individual questions received through website, email, social media, phone, or word of mouth.
    b. Social Media postings
    c. Meetings

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