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Featured Stories

Personal stories from medically fragile children and their families.

Meet Moira

Disease: Pontocerebellar hypoplasia type 2a

Meet Talynn

Disease: Bohring-Optiz Syndrome

Meet Matthew

Disease: Traumatic Brain Injury

Meet Su’Rai

Disease: Shaken Baby Syndrome

Meet Bryson

Disease: Lissencephaly, intractable epilepsy, chronic respiratory distress

Looking for more articles & presentations?

Check out our resources section here.