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Community Resources

*resources being included on this list does not constitute an endorsement by this organization


Select a Resource Category to View Our Resources

Bee Mighty
(Greater Charlotte area)

Bethany’s Butterflies
(Atrium Health and Novant Health patients)

Carolina for the Kids Foundation
(for patients/families served by UNC Children’s Hospital)

The Dancing Goat

Easter Seals UCP

Friendz of Kenz
(Iredell and surrounding area)

Healthwell Foundation’s Pediatric Assistance Fund
– advised to keep checking to see if it reopens to new patients

The LENN Foundation
– apply for intensive therapy assistance

My Gym Foundation

One Simple Wish

The Parker Lee Project

Roberts-Miller Children’s Fund – CF Gaston

Sally’s Angels
(Triad area)

Sophia’s Voice

First in Families of NC 

The Fishstrong Foundation

Jean Wolff-Rossi for Participant Involvement Fund

Me Fine (Duke, UNC, & Wake Med patients only)

NCHIPP reimbursement for private insurance premiums through an employer or COBRA if family member is on Medicaid

NORD | Financial Assistance For Patients With Rare Diseases

Oracle Health Foundation

Sophia’s Voice

United Healthcare Children’s Foundation – UHC insurance isn’t required, just any private insurance

Check back soon for newsletter links!

Children’s Friendship Program | Semel Institute for Neuroscience and Human Behavior
– virtual social skills training

Council for Exceptional Children
– for EC teachers

iCan House
– social skills training for neurodiverse population

Youth Lead NC
– youth leadership training (up to age 30)

Young Adult Rare Representatives – EveryLife Foundation for Rare Diseases
– youth leadership training (ages 16-30)

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